Submit a poster abstract for the European Conference on Rare Diseases 2020!

לכבוד מנהלי בתי חולים ורשויות מחקר,


אנא הפיצו את ההודעה הבאה בין חוקרים העוסקים במחלות נדירותבמוסדיכם.



ד'ר עירית אלון  

מ"מ מנהלת המחלקה למחקר רפואי

טל: 02-5082167   |   פקס:

נייד: 052-3609727













From: ECRD 2020

Submissions for poster abstracts for ECRD 2020, the European Conference on Rare Diseases & Orphan Products (15-16 May 2020, Stockholm), are now open!


As co-organiser of this event organised by EURORDIS-Rare Diseases Europe, and as you have accepted to receive communications from Orphanet as a professional registered with Orphanet, we are contacting you concerning this key event in the rare disease calendar. If you do not wish to receive such emails please contact

We would like to encourage patient organisations, academics, health care professionals and networks, healthcare industry representatives, and all other interested parties having conducted research or studies on rare diseases or public health projects to submit a poster abstract before 10 February 2020:

With the entries for 2020, we are encouraging discussion around our overarching theme that looks to the future of our field: The journey of living with a Rare Disease in 2030

Reach over 800 rare disease community stakeholders with poster abstracts focused around any of these themes, in addition to an open topic:

Theme 1: The future of diagnosis: new hopes, promises and challenges
Theme 2: Our values, our rights, our future: shifting paradigms towards inclusion
Theme 3: Share, Care, Rare: Transforming care for rare diseases by 2030
Theme 4: When therapies meet the needs: enabling a patient-centric approach to therapeutic development
Theme 5: Achieving the triple A's by 2030: Accessible, Available and Affordable Treatments for people living with a rare disease
Theme 6: The digital health revolution: hype vs. reality
Theme 7: Rare Disease Patient Groups Innovations
Theme 8: Other/open topic

By being a poster presenter, you'll have the opportunity to present research results and initiatives to a diverse group of stakeholders and display your work on the ECRD website and mobile app. There will also be special certificates for three outstanding posters, decided by the Poster Committee. Poster guidelines and information about our different themes can be found on the ECRD website:

Please note that you can contact media.orphanet@inserm.frif you do not want to receive emails about events we organise.

We look forward to your active participation!

Warm regards,

The Orphanet Team
Co-organisers of ECRD 2020